Table 1 Included studies
From: Shared decision-making with patients with complex care needs: a scoping review
Authors, Publication year, Country | Study design/ Objectives | Healthcare/ Complex care needs settings | SDM definition |
|---|---|---|---|
Belcher & al; (2006) United States | Qualitative study/ Explore the perceptions of older adults regarding patient involvement in medication decision-making | Chronic diseases/ Physical vulnerability (chronic conditions) Individuals characteristics (polypharmacy, older age) | Physician and patient share information with each other. The physician provides infor- mation, or acknowledges uncertainty, regarding the harms and benefits of available and benefits of available treatment options and the patient provides information regarding beliefs and preferences; both participate in the decision-making process, although in different aspects |
Doekhie & al;(2018) Netherlands | Phenomenological/ Explore the perspectives of patients, informal caregivers, and primary care professionals on patient involvement in the decision-making process in primary care team interactions | Chronic diseases and Primary care/ Physical vulnerability Physical vulnerability Individuals characteristics (older age) | Patient involvement is not a clear- cut concept, rather, it is coproduced through dialogue and interaction by patients, informal caregivers, and professionals in their reciprocal relationships in the primary care team |
Elwyn & al;(2020) United States | Framework development/ Develop and integrate goal-based model for SDM to provide both patients and clinicians with an SDM approach suitable for complex healthcare problems | Chronic diseases/ Physical vulnerability (chronic conditions) Psychiatric vulnerability (substance abuse) Individuals characteristics (older age, challenges to self-manage care needs, negative health behaviours) | Goal-based SDM represents a shift in perspective: previous models of SDM assume a models of SDM assume a models of SDM assume a models of SDM assume a relevant options to be considered relevant options to be considered relevant options to be considered |
Ng & al; (2019) Malaysia | Case study/ A dual-layer approach is proposed whereby PCPs and patients make decisions on which disease(s) (layer 1) and treatments (layer 2) to prioritize | Chronic diseases and Primary care/ Physical vulnerability (chronic conditions, polypharmacy, functional impairment), Individuals characteristics (older age, challenges to self-manage care needs, low literacy, negative health behaviours) | SDM is a consultation model for preference-sensitive decisions for preference-sensitive decisions for preference-sensitive decisions pros and cons of options are discussed, and a consensus on which option is best is agreed between patient and doctor |
Ozavci & al;(2022) Australia | Focused ethnographic/ Explore through a discursive lens, strategies that enable patient-centered medication communication at transitions of care | Chronic diseases and Palliative care/ Physical vulnerability (chronic conditions), Individuals characteristics (older age), Care trajectory change (transition to palliative stage) | [Patient-centered communication] comprises health professionals responding to patients’ informal needs, preferences, and concerns, being sensitive to patients’ emotions and beliefs, providing empathy and support, and enabling patients’ self management and involvement in decision-making |
Parimbelli & al;(2018) Canada | Framework development/ Address the challenges of providing decision support to SDM by 1) formalizing the process, situating it as part of team-based care de- livery, and 2) incorporating workflow concepts allowing workflow concepts allowing tasks | Chronic diseases and Palliative care/ Physical vulnerability (chronic conditions) Individuals characteristics (older age), Care trajectory change (transition to palliative stage) | SDM fosters active involvement of a patient in a process where physician presents evidence-based treatment information and options while openly eliciting and incorporating patient values and preferences |
Roodbeen & al;(2021) | Explanatory sequential mixed methods study Examine SDM in palliative care for low health literacy patients conducted by specialized palliative care clinicians and professionals integrating a palliative approach and assess these professionals’ perspectives on their own SDM | Oncology and Palliative care/ Physical vulnerability Physical vulnerability Individuals characteristics (low health literacy) | In SDM, health care professionals and patients decide the best treatment and care option together treatment and care option together their pros and cons and personal preferences, and the circumstances of the patient |
Sbai & al; United Kingdom | Case study/ Contextualizes the appli- cation of SDM through Physical cation of SDM through Physical Assessment (CGA) in Older patients with Gynecological malignancy | Chronic diseases and Oncology/ vulnerability (chronic conditions, polypharmacy, physical impairment), Cognitive impairment (dementia, Neurological disorders), Individuals characteristics (older age) | SDM is a collaborative process in SDM is a collaborative process in patients (or their appointed/nominated deputies) work in partnership to reach a deputies) work in partnership to reach a deputies) work in partnership to reach a values |
Schoot & al;(2022) Netherlands | Netherlands Provide greater insight into the current decision making process by exploring the expectations, experiences, and health outcome priorities of all stakeholders | Chronic diseases/ Physical vulnerability (chronic conditions) Individuals characteristics (older age) | [SDM] is an approach where clinicians and patients make clinicians and patients make best available evidence |
Treichler & al;(2021) United States | Framework development/ Propose a novel paradigm, Collaborative decision making (CDM), which has the promise to advance SDM and to increase patient- SDM and to increase patient- mental health settings | Mental health care/ Physical vulnerability (chronic conditions) Psychiatric vulnerability (common and severe mental illnesses) | SDM typically includes three steps:1) the patient describes the problem2) the clinician assesses the patient, describes the treatment options and provides clinical expertise and3) the two (or more, if family or others are involved) discussed and come to a consensus about the treatment decision |
Van de Pol & al; (2016) Netherlands | Delphi study/ Develop and gain consensus for a model of SDM in frail older patients with multimorbidity | Chronic diseases/ Physical vulnerability (chronic conditions), Individuals characteristics (older age) | In SDM, professionals and patients share their knowledge, values, and preferences about healthcare choices and, together, they explore beneficial solutions |
Vermunt & al;(2019) Netherlands | Qualitative study/ Analyze clinician percepti- ons of the concept of goal setting within the context of SDM with older patients with multimorbidity | Chronic diseases/ Physical vulnerability (chronic conditions) Individuals characteristics (older age) | Define/explain the issue, present the iptions, discuss pros/cons, preference/values of the user, discuss auto-efficacy and capacities of the user, recommandations and knowledge of the professional, clarify understanding, the professional, clarify understanding, |